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Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our po ...
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A comedy podcast that takes a brief look at this week in history, news, entertainment and more. A GravityBeard Production
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Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome. Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss. Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to cha ...
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Taya’s Tale: How IH Stole My Energy— But Not My Life
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Leave a review! In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersomnia (IH). After years of being dismissed, misdiagnosed, and told to “just sleep better,” Taya finally received her diagnosis two years ago. From child…
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S3E3 Crashing Into a Diagnosis: Meg’s Story
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Leave a review! In this raw and deeply moving episode of Narcolepsy Navigators, we meet Meg—a 36-year-old adoptee, student, and mental health advocate navigating life with narcolepsy type 1, CBID, Behçet’s syndrome, and bipolar disorder. Meg shares the emotional rollercoaster that led to her diagnosis after a devastating car crash, including the ha…
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S3E2 Cooking, Collapsing, and Cristina’s Cataplexy Life
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Leave a review! 🎙️ Ever dropped mid-conversation and had to explain it wasn’t drugs? In this deeply personal and unexpectedly hilarious episode of Narcolepsy Navigators, we sit down with Cristina, the creator of Gourmet Recovery, to explore how she navigates life with Narcolepsy Type 1, cataplexy, and a solid sense of humor. Cristina opens up about…
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Medical Series S1E1: Let’s Face It: Emma’s Truth About Sleep Apnea
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Leave a review! What happens when exhaustion is brushed off as “just stress” or “just pregnancy”? In this moving episode of Narcolepsy Navigators, Emma Cooksey—host, author, and now Sleep Apnea Program Manager at Project Sleep—shares her long, harrowing journey with undiagnosed obstructive sleep apnea (OSA). After years of misdiagnosis, Emma’s wake…
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S3E1 Sarah: Owning Narcolepsy - The Power of Laughing Back
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Leave a review! In this unmissable Season 3 premiere of Narcolepsy Navigators, we curl up for a heartfelt and hilarious deep dive with comedian and podcaster Sarah Albritton, who opens up about living with narcolepsy type 1 and cataplexy—plus a rare twist: sexsomnia. From being misdiagnosed as a teenager in Kentucky to becoming an advocate on stage…
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S2E12 Jacquie & IH: The Reality Beyond Just ‘Tired’
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Leave a review! Summary ️ What if it took a decade to get answers? In this episode of Narcolepsy Navigators, we sit down with Jacquie, a 25-year-old scientist from Texas, to discuss her journey with Idiopathic Hypersomnia (IH)—a sleep disorder that took 10 years to diagnose. From struggling through high school exhaustion to navigating university, l…
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S2E11 Narcolepsy, Mental Health, and Self-Love: A Conversation with Dawn
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Leave a review! Summary What does it mean to truly thrive with narcolepsy? In this powerful episode of Narcolepsy Navigators, we sit down with Dawn Super, a passionate advocate who has lived with Narcolepsy Type 1 for over 40 years. From childhood isolation to self-acceptance, Dawn takes us through the challenges of growing up misunderstood, learni…
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S2E10 Storytelling with a Purpose: How Tre Burge is Making Waves
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Leave a review! Summary ️ What if the world saw narcolepsy for what it truly is? Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially…
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S2E9 Jamie Nicole: Turning Diagnosis into Purpose
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Leave a review! In this inspiring episode of Narcolepsy Navigators, we meet Jamie Nicole, a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, moth…
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S2E8 Sleeping for Weeks: Imaarl’s Story with KLS
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Leave a review! London’s rush never stops—but for Imaarl Duprey, time did. At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle o…
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S2E7 Dreams, Hallucinations, and Chloe's Life with Narcolepsy
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Leave a review! In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorder…
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S2E6 20 Years to Clarity: Glenn's Narcolepsy Experience
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Leave a review! Summary Glenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation. The episode sheds light on many struggles faced by th…
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S2E5 Rachel’s Superpower: Advocacy Through Sleep and Song
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Leave a review! Summary In this episode of Narcolepsy Navigators, Rachel Nesmith, also known as Sleepy American, shares her personal journey with narcolepsy, the challenges of motherhood, and how she uses music as a platform for advocacy. Rachel discusses her diagnosis, the impact of narcolepsy on her life and family, and the importance of communit…
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S2E4 Redefining Rest: Haley’s Resilience with IH and Chronic Illnesses
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Leave a review! Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up abo…
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S2E3 Living with Narcolepsy & Autism: Rahmat's Path
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Leave a review! Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his fa…
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Leave a review! Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world. Welcome To Season 2. We look forward to hearing your stories. Follow and support Narcolepsy Navigators: Instagram: https://www.instagram.com/narcolep…
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S2E2 Awake in Colour: Angela’s Creative Outlet for Narcolepsy
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Leave a review! In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders. What You’ll Learn: How Angela …
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S2E1 Narcolepsy’s Hidden Toll: Tamby’s Journey
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Leave a review! Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to une…
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S1E12 Mathilda: Thriving with Narcolepsy from Age Three
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Leave a review! Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's…
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S1E11 Raising a Narcoleptic Dog: Toast’s Story
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Leave a review! Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a speci…
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Leave a review! Experience the raw and transformative journey of Sara Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highligh…
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S1E9 Christine's Journey: Mental Health and Work Life
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Leave a review! Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We sha…
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S1E8 Katy: Parenting Through the Fog of IH
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Leave a review! Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-di…
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S1E7 Henry's Narcolepsy Journey: A 13-year Battle
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Leave a review! What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009. In this episode, Henry opens up about his trial-and-error p…
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S1E6 Adapting to the Unpredictable: Natalie's Narrative
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Leave a review! Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ine…
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